A day exactly as unexciting as you would imagine. Which isn’t the worst thing in the world of course, since it meant entirely routine test and appointments. But so much waiting!
I wanted to get to this sooner, but really, nothing was important than being there with Will as much as possible, and I didn’t always feel like writing things down.
But that’s changed. We brought Will home tonight. Well, home in as much as the hospital apartments that I’ve been living in for a month and Sallie for nearly four, but it means Will is officially out of hospital now. And it feels good
He’s finally out, after almost exactly four weeks, and five separate operations. His kidney transplant was seen as a success almost straight away, but he’s had significant problems with his bladder both before and after the transplant. He had more surgery to correct that problem, and while it was never dire, there was a couple of weeks in which he didn’t look that good at all.
But that is past, and he is improving immensely. I’d even say he’s back to his old self, all full of his quirky, sometimes unknowing, humour, and his usual happy and good nature. And I’m fine, needless to say. This has probably all been a bigger deal than I’d care to think or admit. When you’re in the middle of it you just get through it, you don’t think about how big things may have been. Later, well maybe…
So Will is out of hospital, we’re this much closer to really being home, and Christmas should be a good one.
(A new picture here when I can get him to stand still long enough and allow me… I’m serious!)
Yes, today was the day, the big kidney donation and transplant to Will double-whammy.
And yes, you can bet I’ve written this well after the fact, because I was certainly in no position to write anything on this day!
And retrospectively, you can be sure it all went very well
… For the first time since I moved away in early February. The whole family is going down there for just under a week, most for medical stuff for Will and Alex, but also the break and the shopping will be good.
We’re actually staying at Ronald McDonald House, which sounds serious, but is really just nice of them to let us in! It should make the hospital stuff so easy, and though I know we have it much better than most staying there, Will has been a consistent user of the hospital since he was born, and we now qualify as being a very remote family, so it’s good there’s a place for us.
Plan to see Toy Story 3 while we’re in Sydney, and do a lot of shopping and see family, but this is basically a hospital visit more than anything else. Shouldn’t be any problem, but it’s something that has to be done.
It’s always the time of the year to think about this thing, as we’re constantly reminded in all media… along with the constant reminder that we mostly never follow through with these things. So just for the record, here’s what I’d like to do more of this year:
– Writing. Well duh, of course. I did pretty well with it last year, but I just want to keep up my consistency. There’s at least two books I could write this year that I already have in mind.
– Revising, editing and improving the above. This one is probably more important, as it’s something I’m less familiar with and less at ease with. I have to apply what I know to revise what I’ve already done. Fix it. Make it better. Improve it. On every level I can find. And this includes getting involved with writing groups and getting other people to help me revise. Which leads to…
– Getting a publishing deal. This one is harder, of course, and it’s not exactly in my control, but I must resolve to do everything in my power to make this happen (usually just lots of the previous two points). And that’s a deal, not necessarily publication, because you can never control the timing of that.
– More physical activity. Might depend on where I live of course, but there’s always something. And a team sport would be better, to inject something more social. Golf would be good too. Get better fitness, eat well.
– Group creative collaboration. This is really vague, but I’m thinking something creative with a group of people would be good. Done a little of this years ago, but would lke to get back to it, and it would most likely be online. Could be gaming, animation, writing, film, comics or something else. Really, the social aspect is as important as whatever the project is. Gettting to know other creative people again and all that.
– Business. Whether it’s IT repairs/help/online freelancing, or a secondhand bookshop, or a combination of both, I want to get that going this year (yes, that would be in Coona in all likelihood). This is really regardless of my main job aspirations there. It will be easier to start slowly if I have the day job, and if I don’t and go for this, well it will just have to be all out then, won’t it?
– Being active in the town. If as is most likely, we’re all in Coona within a month or two, I want to be active in the town. Groups, activities, events. Good for me, good for the family. Good for business above too. And just fun and social at the same time.
– Make stuff. Do more woodworking — all kinds of stuff big and small. Get into some of the electronics things I want to do. MAME cabinets, home theatre PCs, other gadgetry. Build my electric guitar (and then more!) Amp, speakers too? Business or fun, it doesn’t matter, just do it.
– Cooking and foodie stuff. Well, we cook to eat, so just more variety there, but what about more? Ginger beer, beer brewing (try what I made!), other soft drink, other produce. Get Sallie in the garden (and join her?!?), grow stuff. Fun or business, but there’s always possibilities.
– Family. Honestly, I think I’m doing pretty well there. Keep up the time with Will and Alex, give Lachlan more time as he gets bigger and more aware, and just make family the most important thing, despite all the above. Make Will’s school the best it can be for him.
That really covers it all I think. Ten points. That’s quite enough really
Had to post my final Movember look… it’s an eerily effective moustache I suppose, and I did raise over $100, which I’m proud of. And I did get two weeks of free burgers from Grill’d as well, which is nice
So here’s the final Movember do:
I’m always extra rough and ready in these shots, since I usually take them approaching midnight, right before the shave off And it was getting really irritating this year, so I got rid of it straight after the shot!
I’m doing the Movember thing again and have signed up properly this time!
To donate or check out more about the charity, go here: http://www.movember.com/m/303656
The evidence from last year:
Send money now to see me do it all again!
The train trips seem longer than normal at the moment, with the weather really weird and variable. Last week it was over 30 degrees on one day, and now it’s back to winter, at barely 10 degrees in the morning, and apparently no more than 16 for the day.
And the worst thing in the last two days seems to be the return of illness. Not mine thankfully, at least not yet, but for the last two days I’ve been sitting on the train in the same carriage and had exactly the same woman sitting in the same seat hacking away with a terrible cough for 40 minutes. It’s a bad scene, with this really noticeable carry-on effect where plenty of other people start coughing, me included, if only slightly.
Damn I was really mentally wishing some harm on this lady. I really wanted to say something, but she wasn’t that close to me, and proprietry got the better of me. Just didn’t seem much point, though it’s a wonder the people directly opposite her didn’t say something. I’d hate to have been sitting next to her and dealing with that.
It makes me wonder really… is she just going to work and coughing all over her colleagues the whole day? People seemed to think better and stay home back in winter, back in the main swine flu panic, but now that’s somewhat subsided and it’s mid-spring (albeit unseasonably cold), people probably aren’t paying the same attention.
I’ve had a really good winter health-wise, not taking a sick day since March I think, so I’d hate to see that streak broken. The flu shot I got really seemed to have the desired effect, so I hope that sticks. People at work are getting sick now as well, so it might be a late season shock for people.
Then I’ll start getting annoyed about the length of the train ride again… and so on. At least I’m getting some new blogs up; school holidays seems to give me a seat more often. Got to find that writing time of course…
Will has a lot of medical problems, as anyone that knows us is aware. Problems in his kidney and bladder, and it’s followed through to a number of other developmental areas. It’s tough, but we cope.
On Monday, he had another operation, but just a small one this time. He has what’s called a visacostomy in his tummy, basically there to let urine drain out of his bladder because the usual plumbing just didn’t work. It was messy and annoying, but reasonably effective.
But this operation was designed to close that up temporarily and let us work on hopefully getting his functions down there back to normal. For the first few days it didn’t seem particularly effective, with a lot of leakage, but suddenly last night, after he was finished with his bath…
Will started to do a bit of a wee He was standing in the bath and thought it was wonderfully amusing and happy! I don’t think he’s ever done it before, so when I saw it, I was just as happy for him, and made ssure Sallie got to see as well. Of course I excused him for not using the toilet… one step at a time and all that… but it was wonderful to see any progress at all.
There’s still a lot to go with this, and we’ve only got a short time until school starts. And it’s not just a matter of toilet training either — he literally has to learn what it’s like to wee like everyone else. It’s very hard to imagine not being familiar with that, but he’s never been able to do it before.
Sallie would like to point out that I got this moving by being really direct with the Doctors, something I’m quite happy about. But it’s not time for laurel reasting, because there’s a lot to do now, and it’s about time we were finally able to start!
My third son was born today…
Lachlan Turner (middle names not decided yet) was born at 12.18pm on June 24, which just happens to also be my wedding anniversary Yes, the most amazing gift ever, I know, but now we get to share it every year with him as well, and I know who will come first, at least for the next couple of decades… No harm there though!
Lachlan weighed in at 4.04kg and is 54cm in height. He and Sallie are both doing well, though Sallie is pretty out of it from the caesarian of course. They’ll bot be in the hospital until at least Sunday, leaving me to look after Will and Alex. Fun!
A big, big day. More later, I think, when I can post more pics, and even video, finally!